NPGS VIDEO LIBRARY OF RESOURCES
No matter where you are in the world, these videos provide
valuable information to inform and empower parents and families.
The Basics
Neuroblastoma Basics
An overview of the biology of neuroblastoma, staging, treatment - particularly aimed at newly diagnosed families.
Neuroblastoma Basics: Ask the Experts
A panel of experts address parents’ questions on topics that include, why some patient’s tumours are or later become MIBG non-avid, prognostic factors, transplant, earlier diagnosis and more.
Low & Intermediate Risk Neuroblastoma
A session focused on low and intermediate risk neuroblastoma including a recorded Q&A session with parents
Care and Support Topics
Coping with Diagnosis
This session covers neuroblastoma basics including an overview of standard treatment, imaging, and side effects, this presentation will provide a deeper understanding of the neuroblastoma landscape for families who are facing a recent diagnosis.
Pain and Pain Management
Perri Tutelman, a PhD candidate in Clinical Psychology, was a co-investigator on a recently published clinical practice guideline on needle pain management in pediatric oncology. She will speak about some of these recommendations and how families can practically implement them.
Being a Teenager / Young Adult on Treatment
Discussion about the trials and tribulations of young adult life while in treatment. How to juggling academic and social pressures while maintaining a positive outlook.
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Treatments
Advances in Immunotherapy
Could immunotherapy be a key to treating cases of relapse or refractory disease? Experts will present the latest developments in ongoing trials and new combination therapy studies that hope to answer this question.
Cell Therapies in Neuroblastoma, a Panel Discussion
An overview of CAR-T cell therapy followed by a short update from each investigator on individual trials/areas of research, concluding with the panel answering submitted questions.
Progress in Neuroblastoma Clinical Trials
A special interest presentation looking at progress in the treatment of neuroblastoma, what the future holds and what can be done to address challenges that remain.
Molecular Radiotherapy for Neuroblastoma
A comprehensive overview of how and when molecular radiotherapy is used to treat children, including practical information about the process, addressing parent's concerns
The Role of High Dose Chemotherapy
High-dose chemotherapy is a common standard treatment for high-risk neuroblastoma - but there isn’t universal agreement on its continued use. This session presents discussions from the 2021 SIOP meeting as well as the parent perspective.
COG/NANT Relapse Strategies
An overview of the current COG/NANT relapse strategy and future direction, information on current trials, plus how and where to find up-to-date information on new and upcoming trials.
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Maintenance Therapies
Maintenance Therapies
An overview of common maintenance therapies plus a look at options for relapsed neuroblastoma after achieving response or disease stabilization.
Bivalent Vaccine Studies
An overview of results and current research priorities using the bivalent vaccine in frontline treatment and after relapse.
DFMO Studies
An overview of current research priorities and results using DFMO in frontline treatment and at relapse. Current and upcoming clinical trials will be covered.
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Post Treatment
The Importance of Aftercare & Long Term Follow Up
A panel discussion focusing on the practical needs and considerations of children and families after treatment.
PTSD and Post-traumatic Growth After Childhood Cancer
Focusing on the long-term psychological impact of a childhood cancer diagnosis, for parents and children.
Transitioning to Adulthood
The teenage years and transitioning to adult Long-term Follow-up Care following treatment for childhood cancer.
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